Because the procurement of literature or documentation about rare diseases are very difficult to get hold of, these pages should give parents concerned a little help and information about Aicardi-Goutièress syndrome.
Certainly there are no medical or technical texts, and only reports and experiences of concerned Parents.
I would like to strongly stress that these pages are written by parents concerned for other families concerned, and have NO commercial background whit so ever.
Furthermore it is desired beside parents concerned, we hope to contact also specialists concerned as they to can give infomation about Aicardi-Goutières syndrome.