April 28-30, 2011 AGS Family Conference Children's National Medical Center Washington, DC

 

 

Dear Families,

I'm the new genetic counselor working with Dr. Adeline Vanderver

and I'm writing to ask you to:

PLEASE SAVE THE DATE

April 28-30, 2011

AGS Family Conference

Children's National Medical Center Washington, DC

 

I look forward to meeting those of you whom I have not yet met. We will be in touch in the coming weeks with travel information, hotel information and schedules.

The conference will include clinic time for the collection of research information and samples for the ongoing NIMBL sponsored natural history study in AGS, and will also include a day-long session with updates on recent advances in AGS.

Dr. Yanick Crow will be joining us from England, as well as other experts in AGS and care related issues. Please let us know what topics you would like to learn more about at this conference. Also, please let us know if you know of other families who might be interested in attending.

Thank you, and please do not hesitate to be in touch with questions, suggestions, or comments!

Sincerely, Johanna Loewenstein

Children's National Medical Center

Children's Research Institute, Center for Genetic Medicine Research

111 Michigan Ave, NW

Washington DC, 20010

 

More informations will come soon!