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 Welcome to the Aicardi-Goutières Syndrome Website!


The Aim of this Website is to bring together families with children affected on Aicardi-Goutières syndrome (AGS)  around the world.


Because the procurement of literature or documentation about rare diseases are very difficult to get hold of, these pages should give parents concerned a little help and information about Aicardi-Goutières syndrome. I would like to strongly stress that these pages are written by parents concerned for other families concerned, and have NO commercial background whit so ever.


Furthermore it is desired beside parents concerned, we hope to contact also specialists concerned as they to can give information about Aicardi-Goutières syndrome.


Please use the different contact possibilities like the guestbook, the forum or the E-mail to come together in to AGS-family!

For families who not wish to publish their mail-address, are also welcome to make an entry without their data´s.


More Informations and the latest news about the research please visit also the webiste of our foundation

International Aicardi-Goutières Syndrome Association I.A.G.S.A

 Thank you for Your visit !!!