Guestbook
Yanick Crow
Martedì, 06 Giugno 2000 18:33
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I would like to congratulate all those involved in developing this web-site.
You may know we are actively looking for the gene or genes causing Aicardi Goutieres and I would be happy to provide information about this work.
You may know we are actively looking for the gene or genes causing Aicardi Goutieres and I would be happy to provide information about this work.
Gerlinde Dorn
Lunedì, 29 Maggio 2000 21:47
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Thank you for this homepage. We have two daughters 4 and 1 years old. Our youngest daughter has Aicardi - Goutieres syndrom. If anyone will contact us, please
use the eMail.
use the eMail.
Roberto and Nadia Oriano
Domenica, 28 Maggio 2000 22:06
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We are the parents of Diego (2 years old)subjected
at this desease. We are forming an international association against AGS. I invit everyone with this problem to send a picture of the baby and his hystory to this site. Only all together we can win this challenge. We must be more possible visible.
at this desease. We are forming an international association against AGS. I invit everyone with this problem to send a picture of the baby and his hystory to this site. Only all together we can win this challenge. We must be more possible visible.
Donna Miller
Sabato, 27 Maggio 2000 13:50
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Hi. I have two sons, ages 4 and 8, who both have Aicardi-Goutieres syndrome. I would like to correspond with any doctors or families who are dealing with this syndrome. Thank you.
Sincerely, Donna Miller, Traverse City, MI, USA
Sincerely, Donna Miller, Traverse City, MI, USA
389 entries in guestbook